I’m restarting the Vancouver Adult ADD Support Group, the local Adult ADHD support group that I started and ran for 3 years until we became homeless and the group stopped. It’s the adult group of CHADD Vancouver, which I’m on the board of.

We have found a new home for the group, the old home has become available, Thanks for the search & persistence Ed! Thanks also to those that were willing to help out with the group.

The first meeting will be Tuesday May 5th from 6.30 to 8.30pm

Location: Our old home Ravensong Community Healthcare Center, 2450 Ontario st, near main and Broadway, map on the group’s webpage.

Discussion Leader: Pete Quily
Topic: Direction of the group.

For those who attended our support group in the past, 2 questions.

* What worked well in our support group in the past?
* What didn’t work so well or what would you like to change about the group?

For everyone

* What do you want out of & what are you willing to put into the Vancouver Adult ADD Support Group?
* What topics would you like to see covered in the monthly meetings?
* Any news on BC politicians talking about/ignoring the BC Medical Association’s ADHD Policy Paper & 8 Recommendations, including requiring the BC govt to treat ADHD. I.e., what did your local candidate say when you asked them if they supported it, since no one else is asking?

Please help us get the word out there about the only Adult ADHD support group in BC. If you know of any organization or individual that might be interested in finding out about the group, please let them know.

THere are the notes and the links for my presentation Adhd – Busting The Myths, Breaking The Stigma, Showing Reality, One Post And Tweet At A Time for Mental Health Camp Vancouver April 25, 2009. I won’t be able to cover all this material during the session so I have some extra info here. Tell me what you think of it in the comments.

Here are the topics I’ll cover.

1. Defining ADHD
2. ADHD Impairments
3. Co-existing or Co-morbid conditions that go along with ADHD
4. Costs of ADHD
5. Positives of ADHD
6. Famous people with ADHD
7. Myths about ADHD
8. Social media
9. Some ADHD links

1. Defining ADHD

Diagnosis of ADHD as a child

Adult ADHD 5 minute screening test from Harvard & W.H.O.

CADDRA Canadian ADHD Practice Guidelines 2007-8.

Detailed PDFs on diagnosis, treatment, medication, dealing with side effects etc. Must read for ADDers, show your doctor

2. ADHD Impairments

From Dr. Margaret Weiss head of the BC ADHD children’s clinic excellent PowerPoint entitled “The Economic Costs of ADHD”. Hope to blog it in more detail later

Smoking, drug use, health costs, driving, accidents, school performance, behavior, academic achievement, peer relations, parental functioning, divorce, work, unemployment, dysemployment, psychopathology, quality of life, adaptive skills, divorce

Faraone SV, 2003. 2. Pelham WE, 2007 3. Barkley R, ADHD, Guilford 2006
Jensen P ADHD State of Science, Best Practices.  Kingston, NJ. Civic Research
Institute

Also higher rates of attempted suicide, teen pregnancy,

3. Co-existing or Co-morbid conditions that go along with ADHD

Here’s a list of some on my website Note, comorbidity is the norm with ADHD, not the exception, that being said not everyone with ADHD has one of these conditions.

Antisocial Personality Disorder
Asperger’s Disorder
Autism
ODD Oppositional Defiant Disorder
Bipolar Disorder
Conduct Disorder
Antisocial Personality Disorder
Depression
Dysthymia
Generalized Anxiety Disorder
Learning Disabilities
Narcissistic Personality Disorder
OCD Obsessive-Compulsive Disorder
ODD Oppositional Defiant Disorder
Post Traumatic Stress Disorder
Substance Abuse Disorder
Tourette’s Syndrome

For more detail the Mayo Clinic has good overviews of each condition.

Or there’s a book ADHD Comorbidities: Handbook for ADHD Complications in Children and Adults. Edited by Thomas E. Brown, Ph.D.

4. Costs of ADHD

Here’s info from 2 slides from Dr. Margaret Weiss, head of the BC ADHD children’s clinic PowerPoint entitled ADHD in the Health Care System. Will upload later

Costs of ADHD in Children

Annual cost ADHD in children
$14,600 per individual in 2005 US $
18% health care
34% education
48% crime and delinquency
42.5 billion/year
Comparable to asthma2
Increased risk ER visits, co-morbidity, accidents
Depression costs 44 billion

1 Pelham W 2007; Chan 2002; Leibson 2001, Swensen 2003

Cost of Adult ADHD

Excess per capita health care and work loss age 7 to 44 and family members
Administrative claims data from a large company
Total excess cost ADHD in 2000 in the US $31.6 billion
5% treatment of the condition
38% other health care costs
45% increased health care costs of family members
12% productivity losses of adult family members
1 Birnbaum 2005

Costs not accounted for

From Dr. Margaret Weiss head of the BC ADHD children’s clinic excellent PowerPoint entitled “The Economic Costs of ADHD” Will upload later.

Smoking 2
Drug abuse3
Foster care
Fetal alcohol and narcotic syndrome
Victims of crime
Victims of drug accidents
Insurance rates
Increased prevalence and adult prevalence 4.4% with 90% comorbidity4
Suffering to the individual, siblings, families, other children and teachers
Decreased life1
1 Barkley R 2 Pomerleau 3 Wilens T 4 Kessler R

ADHD in BC

BC has NO strategy for ADHD. None at all.

The ADHD clinic at Children’s hospital added on an adult ADHD clinic, they soon found it took have their case load, and it developed a year long wait list for an entire year They asked the BC govt for money to take care of the wait list and they said no, so they closed down the adult ADHD clinic. One way to deal with politically embarrassing wait lists.

In Feb the BC medical association released a policy paper on ADHD, with 8 recommendations. They noted the cost of ADHD to BC, called for the BC govt to treat Adults with ADHD, develop a provincial strategy for ADHD etc. They said ADHD cost BC half a billion a year, but they only counted the cost of children with ADHD which means ADHD is costing BC Multiple Billions of dollars annually. Actual treatment of ADHD is the smallest cost.

Here are their 8 recommendations:

Recommendation 1.

The provincial government must restructure the Child and Youth Mental Health Network so that it meets more frequently, is supported with an adequate budget, and is responsible for producing tangible outputs outlined in a publicly-available strategic plan.

Recommendation 2.

The provincial government should work with stakeholders to ensure that any new child mental health plan includes a strategic plan for the delivery of services specifically for patients with ADHD.

One consequence of the lack of strategic direction has been the reduction in services offered to patients with ADHD through the province’s sole centre for ADHD diagnosis and treatment initiation at BC Children’s Hospital (the ADHD Clinic):

Recommendation 3.

The provincial government must provide services for adults with ADHD and follow-up services for children who graduate from the ADHD clinic at age 18.

Recommendation 4.
Funding for ADHD services should be increased to guarantee waitlists of less than three months for all ADHD patients.

Recommendation 5.
A billing fee for consulting with third parties, such as teachers, should be added to the BCMA Fee Guide to encourage optimal coordination with teachers in the diagnosis and management of ADHD.

Recommendation 6.
Medical professional associations for pediatrics, child psychiatry, psychiatry, neurology, and family practice should endorse the Canadian Attention Deficit Disorder Resource Alliance (CADDRA) ADHD practice guidelines; or review, amend, and then endorse revised CADDRA guidelines. Such guidelines should be accompanied by the implementation, in primary care offices across British Columbia, of a ‘diagnostic toolkit’ for ADHD.

Recommendation 7.
PharmaCare should expand coverage for long-acting ADHD medication in order to facilitate compliance, minimize stigma and prevent missed opportunities for focused learning.

Recommendation 8.

In order to improve access to services for ADHD patients and foster the kind of collaborative care arrangements necessary to provide optimal care, both the MoHS and MCFD should train specialized ADHD clinicians for mental health teams and provide BC families access to community services to complement treatment by physicians.

End of Recommendations.

The BC NDP who in the 70′s emptied the mental hospitals in the guise of community care and never did that and then abandoned the mental patients to the predators of the downtown eastside, said nothing about it. NONE of the BC political parties have mentioned ADHD in their platform. Hopefully ADDers and their families will start contacting their MLA candidates to show that their is a need for proper treatment.

Here’s a Vancouver Sun article on a local with ADHD

5. Positives of ADHD

Top Ten ADD Advantages in a Hi Tech Career.

This post got me top of Digg, Delicious, 30,000 unique hits in 3 days, and 200+ links. Still my most popular post on my blog.

1. The Ability to Hyperfocus. IF interested.
2. Rapid Fire Mind.
3. Multitasking at Will.
4. High Energy Level.
5. Highly Creative.
6. Quick Learner. IF interested.
7. Stimulus Seeking Brain.
8. Constantly Scanning your Environment.
9. Great in a Crisis.
10. Risk Taker.

151 Advantages of ADD

My ADHD strengths blog post category

6. Famous people with ADHD

Paul Orfalea who founded Kinko’s. His book is called Copy This! : Lessons from a Hyperactive Dyslexic who Turned a Bright Idea Into One of America’s Best Companies

JetBlue Founder and billionaire CEO David Neeleman who attributes his creativity to ADHD

Magic Johnson

Michael Phelps

Justin Timberlake (ADHD & OCD)

Howie Mandel (ADHD & OCD)

Seth Godin Marketer Author Blogger. “I clearly have ADHD,” he says. “Lucky for me the world kind of organized around me rather than the other way around. It’s such an asset.”

Clarence Page Chicago Tribune Columnist & Author Famous for: Winning a Pulitzer Prize. Twice.

Ty Pennington

James Carville Political Strategist who co lead Bill Clinton’s campaign that won the presidency

Payne Stewart who won the 1999 and 1991 US Open & other pro golfers

7. Myths about ADHD

Myths About ADHD Misconceptions About ADHD – Separating Fact from Fiction

Many Parents Want Distance Between Own Kids And Those With Mental Illness

New research suggests that Americans are more likely to socially reject children with mental illness than they are those with physical illnesses such as asthma. Almost 30 percent of the 1,134 participants said they would not like their child to become friends of a child with depression, and almost one in four said the same thing about ADHD. But a kid with “normal troubles” and asthma, only 10%.

Many ways to take action on stigma from SAMHSA’s Resource Center to Promote Acceptance, Dignity and Social Inclusion Associated with Mental Health.

*  Tips on Taking Action
* Organizing a Campaign or Program
* Planning Anti-stigma Events and Strategies

How to Respond to People Who Say “ADHD doesn’t exist”  & Clinical Evidence of The Existence of ADHD as a Real Condition My answer to the flat earth people.

Pencil, Pens and Meds. LA Times Editorial Stigmatizing ADHD Get’s Fisked By Gina Pera

Helping Your Child Cope with the Stigma of ADHD

Silencing Skeptics: The Truth About ADHD and LD
What is ADHD? Does medication really help? Can adults have ADD? Learn to clear up common misperceptions about ADHD with authority.

Overcoming the ADHD Stigma
An expert psychologist shares his secrets for fighting ADD ADHD stereotyping in children and adults.

Myths and Misconceptions About AD/HD: Science over Cynicism

Helping your child overcome the stigma of ADHD

Spread The Truth About ADHD
3 ways to help friends and family understand that ADHD is a real disorder with real symptoms and real solutions.

8. Social media

12 Ways to Fight Mental Health Stigma With Social Media
I created this post specifically for my presentation. Please check it out, and if you have any other ideas, let me know.

What things have you done to fight stigma against ADHD?

What are you willing to do?

9. Some ADHD links

ADDCoach4u My 130 page ADD Website

Pills Don’t Teach Skills Website of one of my ADHD Coaching Clients

CHADD Vancouver Local ADHD support group I’m on the board of

CADDAC Center for ADD Advocacy, Canada

CADDRA Canadian ADD Resource Alliance

Thanks and please let me know any feedback in the comments

This is for a presentation I’m doing at Mental Health Camp Vancouver (a conference combining social media with mental health) called ADHD – Busting the myths, breaking the stigma, showing reality, one post and tweet at a time. While ADHD is especially stigmatized as the orphan of mental health conditions, especially Adult ADHD, it’s not the only one that suffers stigma.

12 Ways to Fight Mental Health Stigma With Social Media

Arranged from more anonymous to more personal, and less effort to more effort. There’s a choice for everyone.

1. Click on a factually correct, non stigmatizing mental health article, or personal story via a blog post, tweet, podcast, YouTube video, Facebook update, Friendfeed, web forum etc. Result will traffic to the site/account, encouragement for the creator to continue to create, possible revenue and good for SEO just from that one simple easy click.

2. Actually read/listen/watch above content. Assuming the content is non stigmatizing, and helpful, interesting, or entertaining do one or more of the following.

3. Vote on it /rate it, i.e. number of stars if available.

4. Socially bookmark it in site’s like Stumbleupon, Delicious, etc.

5. Submit it to sites like Digg, Yahoo Buzz, Reddit, Mixx, Propeller etc.

6. Forward the content to others either without a comment, or with a personal comment by :

a) Email
b) Twitter i.e. Retweet it, or on Facebook, Friendfeed etc

7. Comment on the original article, post, video etc in one of the following ways depending on your comfort level:

a) anonymously
b) with your first name
c) with your full name
d) with your full name and the name of your blog/website/Twitter account etc.

8. Do a response to the original content by a blog post, tweet, or video on your blog or social media account

9. Respond to someone lying, stigmatizing, minimizing, trivializing, or shaming a person with a mental health condition or the actual condition itself. This can be done in a wide variety of creative ways depending on your personality, subject knowledge, and comfort level with conflict, some of us occasionally enjoy conflict for a good cause:) Perhaps involve your social media friends in the effort.

10. Create some original content that’s factual, anti stigma or a personal story or story about someone you know, or all of the above on one or more of your social media accounts.

11. Participate in a social media mental health campaign. I.e., anti stigma, awareness, fund raising, political action, online petition, contacting politicians etc. Could be all online or a combination of online and offline i.e. involving traditional media.

12. Create a social media mental health campaign.

If you know of any other ones or some good examples of the above, please share them in the comments for others. If you think this was useful, please do one of the above for this post:)

Hopefully some of you might take one action now and ask your BC MLA candidate if they support the 8 Recommendations of the BC Medical Association in their February policy paper on ADHD. Currently BC has NO Strategy at all on ADHD, Adults with ADHD are especially ignored, ADHD is costing BC billions annually, and the BC Liberal Party, the BC NDP, and the BC Green Party have all ignored the recommendations, they have nothing at all in their platforms for ADHD. Hopefully BC ADDers won’t be abandoned again.

If you don’t know your riding use the BC MLA finder

List of  BC Liberal Party candidates

List of BC NDP candidates

List of BC Green Party candidates

List of BC MLA candidates on twitter

UBC and SFU are hosting two free public forums titled “Searching Health Information Online” as part of the Technologies for Better Health project.

It’s led by an experienced medical librarian.

Free, but you need to register online.

When we use the Internet as a source of information about health and wellness, how do we know that what we are finding is appropriate, reliable and trustworthy? The following FREE learning events are offered as part of a joint SFU-UBC initiative which explores how information technologies in health can best benefit us all. Register in either or both:

Interactive Presentation
April 29, 2009, 6:30 to 8:30 pm
Lecture Theatre 1020
G. & L. Diamond Health Care Centre
(at Vancouver General Hospital)
2775 Laurel St. (& Oak), Vancouver

Hands-On Session
May 13, 2009, 6:30 to 8:30 pm
Room 3300
Simon Fraser University Surrey
(at Surrey Central SkyTrain Station)
13450 102nd Ave., Surrey

Today’s Vancouver Sun Monday April 13th 2009 has an article on Adult ADHD on p A5. The title is B.C. lacks resources to treat, diagnose adults with ADHD by Amy O’Brian. Web version is here.
They interviewed a local adult with ADHD, John Scrivin.

Please check it out and let others that might be interested in it know about it.

If you have any opinion about the article you might want to express it in the comments section at the end of the article. Here’s a few excerpts.

John Scrivin spent his whole life feeling like he didn’t fit in — like he never quite understood what was going on.

As a teenager and an adult, he identified as an outsider. Angry outbursts were common and he was eventually diagnosed with depression.

But Scrivin always suspected there was something more going on.

It wasn’t until he was 55 that he was diagnosed with Attention Deficit/Hyperactivity Disorder or ADHD, a disorder most commonly associated with children, but also highly prevalent in adults.”

Finding out it had a name and treatment was huge,” he said.

“Even at the tender age of 55, it made a world of difference in terms of my happiness.”

How many more people will have to wait 5 decades or more to get diagnosed with ADHD?

John Scriven: “There is no doubt I would have been diagnosed sooner if there had been more resources.”

Yes this is a very common problem for adults with ADHD in BC. As an Vancouver based adult ADHD coach, I get calls and emails on a regular basis from people trying to find someone that knows enough about ADHD to diagnose it, especially in adults. Some say their doctor says they can’t have ADHD because they did well in school or work, which show their ignorance of the condition since there’s a MENSA ADHD group with 500 people in it and billionaires with ADHD. But there’s also a lot of addicts with ADHD, people in jail with ADHD and many in between

Medical student’s & psychologists aren’t properly taught about ADHD in University according to many BC based doctors, psychiatrists & psychologists I’ve talked to who DO know about ADHD because they went out of their way to learn about the condition on their own time and dime.

“There are few resources for adults with ADHD and not enough awareness about symptoms and diagnosis, says Dr. Derryck Smith, a Vancouver-based psychiatrist who treats people of all ages with ADHD — including some in their “geriatric years.”

“There’s nowhere to send these people for treatment,” Smith said.

“We want more resources in the adult treatment sector. We want Pharmacare to cover some of the longer-acting, more modern medications. And we want the government to have a treatment strategy for dealing with this as a public health issue.”

The BC government currently has NO STRATEGY for ADHD. None.

Also there’s no sign that the NDP will be any better at dealing with ADHD. The Green party leader is pretty clueless about ADHD.

Expecting people with a condition that’s known for having problems with distraction, impulsivity, poor time management, and forgetfullness to take a pill 3 times a day every day on a regular schedule? Isn’t that sadistic? Even without the problems of the rebound effect of short term ADHD medications? Maybe one day BC will catch up to Saskatchewan, Ontario & Quebec that do cover long acting ADHD medication.

The only public Adult ADHD clinic in the province, the BC adult ADHD clinic at Children’s hospital had a year long wait list for an entire year for adults. They asked the government for money to deal with the waiting list, the BC Liberal government refused and they closed the clinic in 2007, and didn’t reopen the clinic at another hospital, they abandoned adults with ADHD because the long wait list was politically embarrassing.

Hopefully people with ADHD & their family members will ask their potential MLA’s if they will implement the 8 recommendations of the BCMA’s ADHD policy paper. Best time to get a politician’s attention is when they want your vote. There’s a BC election May 12 next month.

contact your local NDP candidate

contact your local Liberal candidate

Photo Credits: dogsbody and Brent Granby

Vision Vancouver’s Gregor Robertson’s campaign understood the internet, social media, and web culture much better than the NPA’s Peter Ladner’s did and that’s one of the many reasons he won the 2008 Vancouver civic election.

In this comprehensive post I compare and contrast the two Vancouver Mayoral candidates in the 2008 Vancouver civic election. Gregor Robertson of Vision Vancouver and Peter Ladner of the NPA in 25 different areas involving social media websites, (Facebook, YouTube, Twitter, Flickr and Friend Feed), various search engine results & web presence. Data was collected election day, Nov 15, 2008. I did a similar post comparing Barack Obama & John McCain in social media & SEO. I’m an adult ADHD coach and a former political science student and long time political junkie who’s been online since before the world wide web started.

Here’s what I’ll be showing you.

9 overview slides of the data

Comparison chart of the data

Analysis and opinion

Links to Vision Vancouver’s and the NPA’s campaign’s social media profile pages

Overall conclusions

Social media lessons and resources

Links to Vancouver area blogs that cover politics

My 9 slides have an Attribution-NonCommercial-ShareAlike Creative Commons license, so feel free to use them or remix them, just give me credit and a link.

Intro

This blog is usually about the strengths and challenges of adult ADHD, and trying to raise awareness of Adult ADHD in Canada, where we’re a decade behind the Americans, and Vancouver is way behind Ontario, sigh… and the world from the perspective of an Adult ADHD Coach who has Attention Surplus Condition more commonly called ADHD.

BUT I’m also a political science major and a politics junkie. So occasionally I’ll do posts on politics, humour, and other things that interest me. Disclosure, I’ve talked to both candidates briefly during the beginning of the 2008 Vancouver civic election.

Since the 2008 Vancouver civic election was so close the US Presidential election where I recently did a post called Barack Obama Vs. John McCain Social Media and Search Engine Scorecard, I decided to a similar post for the 2008 Vancouver civic election in my hometown. Congratulations to our new Mayor Gregor Robertson.

Social Media Websites

Facebook

Gregor Robertson has 3 Facebook pages
1. His personal one.
2. His politician one, his word.
3. His Gregor Robertson and the Vision Team One. This is the one I’m measuring in the chart.

Peter Ladner seems to only have two,
1. His personal one
2. His Vancouver NPA one. This is the one I’m measuring in the chart because that’s the main one they seem to be using for the campaign. That being said, Peter has more friends on his personal Facebook page, 617, than he does fans on the Vancouver Non Partisan Association’s Facebook page, 488.

So I just compared the two official campaign pages. Peter Ladner has 8 videos in a YouTube box while Gregor only list 3 videos, less prominently on the lower right hand side. But he has 15 videos on YouTube. Why didn’t the Ladner campaign post the other 7 on their Facebook page?

Both Peter and Gregor allowed wall posts on their respective individual pages. Vision Vancouver’s online campaign team decided to allow wall posts on their Facebook page, unfortunately the Non Partisan Association did not. Being open and engaging in the community was probably part of the reason why Gregor Robertson had twice as many Facebook Friends as Peter Ladner. Too bad Peter Ladner wasn’t as interactive on his NPA page as his personal page. That was a lost opportunity to engage the Facebook community. Seemed here like an open source style campaign vs. the old fashioned tradition command and control one. Command and control doesn’t work so well online, look at what happened to John McCain.

YouTube

Peter Ladner cranked out much more content on YouTube than Gregor Robertson did, more than 4 times the number of videos. Surprisingly, both candidates had very few subscribers on YouTube. Peter had 7, but for some reason refused to show any, Gregor had 4 and did list them. Both were smart enough to repurpose their videos by embedding them in their Facebook pages.

I went to a debate at the Greek Church on Arbutus and saw a videographer at the back filming it, later found out it was for the Ladner team. I assumed it was for ads or to improve their candidates speaking performance. I tried to ask a question about why everyone in the campaign was talking about the well known problems of addiction and mental health in Vancouver but no candidates or media outlets were talking about the links between undiagnosed and untreated ADHD and addictions. These links are well known among those knowledgeable about ADHD but less so in the general public. Unfortunately they didn’t ask that one.

The SMALLEST numbers I’ve seen on ADHD and addiction are 20-25% in peer reviewed clinical journals in Pub Med and I’ve seen much higher. For example see this as well as this, and this.

Kind of frustrating especially when the BC Liberal government and Children’s hospital closed down the only provincial Adult ADHD clinic in the province (where it’s very difficult to find someone that knows enough about ADHD to diagnose it) at BC Childrens hospital because it had a 1 year wait list, which was politically embarrassing. Kill the wait list; avoid bad media coverage about long wait lists. I contacted various people in the BC NDP’s offices and got promises of action from several NDP staffers, who subsequently did absolutely nothing. It’s easy to forget one big reason we have so many homeless people in Vancouver is the NDP emptied out large mental institutions because they were so “terrible” and decided to “house them in the community” then promptly abandoned them to the predators of the streets.

We got coverage of the adult ADHD clinics shutting their doors on BCTV, but no other media outlet covered it, and the only public BC adult ADHD clinic is still dead and the patients are still abandoned.

Twitter

Gregor has nearly 5 times as many twitter followers than Peter, but Peter has 3 times as many Twitter update posts or tweets.

Gregor’s tweets (posts on twitter) were nearly all one way promotional broadcasts. He (or the person(s) that posted as him) only responded to other Twitterers 3 times and 2 of them were to his online campaign manager, @koriB. Sounded to me like Kori was talking to himself but I can’t be sure. UPDATE: Kori just mentioned in the comments it was Gregor doing the tweeting not him. But Gregor did technically follow 159 people. Whether he or his campaign staff actually read any of their tweets, responded to his followers or other’s Tweets or cared about interacting with those people, I couldn’t tell.

Most of the NPA’s tweets seemed to be mainly from/about NPA council candidate Sean Bickerton

The NPA’s tweets were 100% self promotional, not a single response to anyone else on twitter. They didn’t believe in the mantra of social media consultants and connected web strategists, “listen to the conversation”.
That is, they weren’t interested in following anyone else on Twitter, they didn’t even fake it, they had 0 followers. Obviously clueless about Twitter.

Vision Vancouver Twitter jacked Peter Ladner’s name on Twitter. That is, Peter and his campaign didn’t bother to register his name on twitter, (an internet rookie movie) so someone from the vision Vancouver camp registered his name and created a Peter Ladner account on Twitter, started putting out Tweets that insulted/made fun of Peter Ladner. This is why politicians and other visible people, businesses and other organizations should start learning more about social media, just as a defensive move if nothing else.

Frankly it was a clueless move. It’s one thing for a third party to do something like that like the brilliant Fake Steve Jobs did.

But for someone from the opposing campaign to do so and not create something like fakepeterladnder instead of using his real name is just not kosher, someone who did that in the US would probably get fired for it. Plus it irritated members of the local twitterati and others on twitter, especially Vision Vancouver’s seemingly unwillingness to apologize about it. It’s still up there, and was really counterproductive. Hopefully our new mayor understands the lessons of what happens to arrogant politicians in BC, they get defeated. Miss 604 reports that #civicvote2008 is now the second most talked about topic on Twitter today.

It also got mainstream media coverage since Vancouver Sun Journalist and blogger Gillian Shaw is unlike most Vancouver journalists and has a blog and a twitter account, and unlike other Vancouver Sun and Vancouver Province journalists, she actually is clued into the blogosphere enough to have a blogroll with other non company blogs listed. Was also picked up by several blogs here are a few stories on it.

Most of the searches on Twitter for Peter Ladner seem to be related to Vision Vancouver’s campaign’s Twitterjacking of his name. Gregor (or his campaign) was smart enough to create an individual account on Twitter with his real name, which has no content but links to the Gregor08 Twitter page. Unlike John McCain, both candidates were smart enough to send out get out the vote tweets on November 15th, election day.

Flickr

There was more than 3 times the number of search results for Gregor Robertson as there were for Peter Ladner on Flickr, and 256% more photos on Vision’s Vancouver Flickr profile page than the Vancouver NPA’s. Vision Vancouver’s group pool on Flickr had 9 members and 400 items; the NPA had no group pool.

Vision started using Flickr on Nov 16, 2007, the NPA first started using Flickr on Jul 6, 2007, so the NPA started 4 months earlier, plus the NPA has been a political party since 1937 (so you might assume they’d have more photos to upload). Vision just started up 3 years ago and the mayor was from the NPA, and they had more elected members than Vision, but still had fewer photos.

Probably those restless cultural creatives and young folk creating all that content. Also Vision’s online team seemed far more web 2.0 savvy then the NPA’s. Plus I think Vision’s policies appealed more to that crowd.

Using the web tools alone is not enough if your policies and past actions don’t resonate with those people creating and consuming content on those social media sites. Just as John McCain had George Bush as an anchor on his campaign, Ladner had his own anchor, Sam Sullivan, i.e., Sam’s Strike. But to be fair to Sam, he was a small anchor compared to George Bush.
Flickr was created in Vancouver and it’s a very popular photo sharing site, that many local blogger use to spice up their blog posts. I’ve posted creative commons licensed slides for this post on my Flickr set here.

Friend Feed

10 of the links to “Peter Ladner” was done by one user that had them removed, but still showed up in the Friend Feed search, so the actual number was smaller. Even still, more results for Peter Ladner. I didn’t check every single link on both, but in this case the last ones looked pretty similar by the same user. They probably just had trouble uploading the video file on blip TV.

MySpace

I didn’t list MySpace activity on the chart, since neither candidate has any profiles on the site unlike Barack Obama and John McCain did on my previous post. There were only 6 search results for Peter Ladner, 4 for Gregor Robertson. When I searched for Peter Ladner on MySpace, there was an ad for Peter Ladner and the NPA. Interestingly, when I searched for Gregor Robertson, I found the same ad for Peter Ladner and the NPA. Maybe Gregor’s team was doing the same thing, I’m not sure.

Didn’t list WordPress.com results either, since there was such little activity there. There were 10 search results for Gregor Robertson on WordPress.com, 9 results for Peter Ladner.

Search Engine Results For “Gregor Robertson” and “Peter Ladner”

Gregor Robertson was elected as an NDP MLA in 2005. Peter Ladner was elected to Vancouver city council in 3 years earlier in 2002 and yet Gregor Robertson beat Peter Ladner in every search engine. His margin was biggest in google’s index, 48%, but not by that much in the other ones, around the 10% range. Keep in mind that more search engine results or user generated social media does not always mean that the results are positive towards the candidate, many are negative of both. The political blogosphere can be a tough place. One other thing to keep in mind is that bloggers are often content creators on other social media websites as well.

Quick Short Diversion to BC Provincial Politics

Gordon Campbell’s BC Liberal party is smart enough to realize this. The BC Liberals are encouraging their supporters to target bloggers on their website, and get involved in social media. I noticed that they’ve removed some BC bloggers from the list. I believe that bloggers and social media content creators will be even more important in coming civic and provincial elections, political campaigns will ignore them at their peril. The BC Liberal Party has got a very well designed and modern website, more similar to Vision’s than the NPA’s.

Carole James’s BC NDP’s website is quite antiquated in comparison, and is too clueless to even mention anything about blogs or social media on their get involved section. Look at the wording of their main URL, http://home.bcndp.ca, home? Did someone create this website a decade ago and forget about it? It get’s worse. Look at the order of the URL’s on their top navigation bar, they’re all subdomains! I.e., http://newsroom.bcndp.ca/ instead of http://bcndp.ca/newsroom. If you don’t know why this seems nuts, ask someone who knows SEO to explain. This web 2.0 cluelessness will hurt the BC NDP in the upcoming election.. I guess the old fashioned left can be command and control too. Maybe they should hire Gregor’s online team quickly, the election’s in May 2009, not too far away. Also hire an SEO, same title tag for every page on the site? Which after permalinks is THE most important on page SEO thing you can do. Just like John McCain’s and Peter Ladner’s website. Perhaps being so unaware of the internet that your campaign has the same title tag on every page of your site is a predictor of electoral defeat:)

Compare the design and functionality of the BC Liberal Party’s get involved section to the NDP’s version. Which one would you be more likely to click through? Hire a usability expert too. The BC NDP’s website looks like a decade old. Looks like the BC NDP will be roadkill on the information superhighway in the upcoming election. Maybe the BC NDP needs to lose and election too in order to find a new leader the gets the internet and social media.

Responding to Bloggers

I can only give my personal example, not sure if/how the campaigns responded to other bloggers. If you blogged about the civic election and got a response from either campaign, let me know in the comments.

I recently did a post calling for the civic election candidates and the media to start talking about the connection between ADHD and drug addiction and crime and the lack of services for adults with ADHD in Vancouver, and calling for a mental health advocate. One member of Vision mentioned in a comment on my post that vision supported a mental health advocate while the NPA opposed it but ignored the main question of my post and never bothered answering my follow up question. At least they responded, the Ladner campaign never bothered to.

Internet Presence for Gregor Robertson and Peter Ladner

From just the 2 domains visionvancouver.ca vs peterladner.ca, Vision clearly wins in every category. But Vision only has one website. If you look at the Vancouver NPA site, they beat Vision’s in pages in google’s index 283 pages to 219, the NPA has less Yahoo Links-Pages 201 vs 481, but more Yahoo Links-Inlinks, 1281 vs 219. So if you combine both Peter Ladner’s site with the NPA’s one, they have a greater online presence then Vision Vancouver in 2 out the 3 metrics.

However Vision Vancouver’s website is superior in to both Peter Ladner’s and the Vancouver NPA’s website in:

Design
Functionality
Usability
Interactivity
Encouraging Engagement
Social media features

I’ll do another post later comparing the two main websites.

List of Gregor Robertson and Peter Ladner’s Online Profiles on Social Media Websites

Gregor Robertson’s Websites

Vision Vancouver’s Website
Gregor’s personal Facebook page
Gregor’s politician Facebook page, his word
Gregor Robertson and the Vision Team Facebook page
Gregor Robertson YouTube
Gregor Robertson Twitter page
Gregor Robertson’s Fake Peter Ladner Twitter Page (Twitter jacked)
Vision Vancouver’s Flickr Photostream

Peter Ladner’s Websites

Peter Ladner.ca
NPA Vancouver website
NPA Vancouver Facebook page
Peter Ladner’s personal Facebook page
Peter Ladner YouTube
Peter Ladner Twitter
NPA Vancouver’s Flickr Photostream

Overall Conclusions

Of the 25 different metrics I used, Gregor won 17, Peter Ladner won 6, and they tied on two. Gregor Robertson was the clear winner. He won every single category in the search engines if you don’t add the 2nd NPA Vancouver website.

Gregor Robertson’s Online Campaigner was Kori Brus. who has a blog, and twitter account and is active online While the twitter jacking was a definite screw up, overall he performed far superior to his counterpart in Peter Ladner’s campaign, if in fact Peter did have a dedicated person for that. I couldn’t find out by googling it. Clearly not a good sign.

Both campaigns could have done better in engaging people on Youtube, Flickr and Twitter instead of just old fashioned push broadcasts. They both could have had created groups of individual on their website by demographics or areas like the Obama and McCain campaign did.

Social Media Lessons.

1. It’s important for a political organization, business, non profit that wants to get involved in social media websites like Facebook, Twitter, Youtube, Flickr etc to understand how the tools work, simply from a defensive point of view, even if you don’t plan on participating in them. I.e., avoiding getting Twitterjacked like Peter Ladner.

2.Why were both candidates so anti social on social networking sites that were designed specifically to allow people to, you know.. socialize?

Robertson did well on Facebook.

But look how many YouTube subscribers they both had. Look at how many YouTube groups they were members of. Zero.

Look at the how many photos they both posted on Flickr. Then compare how many contacts they had on Flickr. Look at how many Flickr groups they joined, ZERO.

Now look at the number of contact and groups this sociable local blogger’s has on Flickr.

If you’re creating all that content, LEVERAGE IT. And do so by being engaging with the community in a non pushy way. Google open source politics to see the way of the future.

If you’re an individual business person you may or may not want to get that involved in social networks because to do them right can take time and resources, or it may not be the right fit for you, or your resources are devoted elesewhere. Frankly I can’t picture myself spending time on MySpace, but I know some people love it.

3. It’s even more important to understand the ecosystem in which the tools are used.

For example flashy blinking graphics with extreme contrast are fine on MySpace, but would not be fine on LinkedIn. If you don’t understand the culture of the site and the users and how they interact with each other, you could be seen as an unwelcome outsider or a spammer, and have some really counterproductive results.

Here are a few social media mistakes to avoid.

So if you decide to participate in a social media network, learn about the culture of the site and engage with the community. Barack Obama didn’t dominate John McCain in social media and on the internet simply because he understood the tools and McCain didn’t, he beat him because he understood the environments in which the tools were used, the users of those tools and used the tools to engage and organize people and to get them to engage and organize others.

If you don’t understand this, hire someone that does like a social media consultant.

Gregor beat Peter Ladner by a fairly wide margin for many reasons but in a close election a good website and blogging and social media strategy could make the difference between losing and winning. I’ve watched elections for 30 years some are really close. Smart politicians will get clued in or pay someone to help them get a clue, the dinosaurs that don’t will be adding another potentially dangerous vulnerability to their campaign.

Resources relating to why and how to get involved in Social Media

The emergence and rise of mass social media

Social Media – Visual and simple images explaining trends, concepts and technologies driving Social Media growth

How do I convince my boss of the ROI of new marketing? David Meerman Scott answers the question via video.

Is It Worth It? An ROI Calculator for Social Network Campaigns

Social media ROI resources and general social media stats

A graphical categorization list of social media tools

Social Media & NonProfits: Make it Easy for Your Fans to Help You by local blogger and social media consultant Monica Hamburg

Alltop – Top Social Media News

E-Metrics: Followers, Friends, and Fans - Expanding Your Online Community By Beth Kanter

Vancouver Blogs That Cover Politics

Here’s a list of some blogs that cover politics in Vancouver that you might want to check out. I didn’t list politicians that blogged, since most of them just start up before the election, go dead shortly after and often just use blogs mainly as a press release device. This is by no means an comprehensive list, and it’s just of list of some blogs that I sometimes read or have searched to see who blogs about Vancouver politics. In listing them, I’m not saying I agree with what every blog on the list has to say.

I know some of the bloggers on the list personally from meeting them at the excellent Vancouver Bloggers Meetup Group hosted by Raul, or other blogging/tech events around Vancouver of which there are many, Vancouver has a thriving tech/blogging/Web2.0 community Apologies in advance if I’ve missed your political related blog on this list, I’m sure I missed quite a few.

If you have an opinion on what you read on someone’s blog, agree, disagree (respectfully, not rudely), or have another related point to make, let the bloggers know in the comment section of the particular blog post. Bloggers love feedback. Including this one:)

Vancouver Political Bloggers or Occasional Political Bloggers

For Vancouver Sun civic politics reporter Frances Bula is in a class of her own. Read her first, and encourage her to fully join the blogosphere by adding a blogroll of local Vancouver bloggers:)

The others are in grouped in sections then alphabetically.

Vancouver Online Magazines

Georgia Straight Politics Blog
Only Magazine
The Tyee
The Vancouver Observer

Vancouver Group Blogs

Beyond Robson Especially Sean Orr
Vancouver Metblogs
Vancity Buzz

Vancouver Primarily Political Blogs
Bill Tieleman
Irwin Loy
Keeping it Real
Left Eye on Vancouver
Oldtown News
Pacific Current Vancouver Sun blog
Paying Attention
Pacific Gazette
Public Eye Online
The Official 2010 Olympics Newswire
The Vancouver Manifesto

Vancouver Blogs That Sometimes Discuss Vancouver Politics

Adult ADD Strengths
Buzz Networker
Chinese in Vancouver
Currents
Hummingbird 604
Loud Murmurs
Miss 604
Mori Therapy
Paul Hillsdon Yes he’s in Surrey but he does have some great material, and I hope he wins next time.
Rob Cottingham
Stephen Rees
Tris Hussey
The Ugly Chinese Canadian
The Vancouverite
Ursa Minor Bear 604
Van Rambling

Why Blogs & Other Social Media Matter. Quantifying The Dangers Of Not Cluing In. 29 Social Media & SEO Metrics.

Here’s what I’ll be showing you in this post:

Comparison chart of the data

Overview slides of the data

Analysis and opinion

Links to both campaign’s social media profile pages

Overall conclusions

Analysis of both candidate’s websites and understanding of the internet & social media

Why “getting” the net & social media is critical for future campaigns

My 10 slides have an Attribution-NonCommercial-ShareAlike Creative Commons license, so feel free to share and remix them, just give me credit and a link.

UPDATE: I added some charts below to better present the data.

Comparison chart of 29 measurements of Barack Obama’s & John McCain’s activities, followers and presence on popular social media sites , Facebook, MySpace, Twitter, YouTube, Flickr & several search engines (data collected Nov 5, 08, excel charts above below nov 12) Analysis below the slides.

* = The Candidates Sites on Flickr, Youtube, Facebook, Myspace and Twitter.

I got the idea for this as I was surfing the 2008 US Presidential candidates websites late Monday night, looking for ideas for online ADHD advocacy from my last post. As an Adult ADHD coach who has ADHD, I wanted examples to help raise awareness of Adult ADHD. I wondered how many pages Barack Obama’s website had in Google’s index vs John McCain’s. So I did a site search site:www.barackobama.com etc. to find out. Wow.

Nearly 6,000 % more pages on Barack Obama’s website than John McCain’s.

So being the curious type (a major ADHD strength), and a political junkie (I had the same major as Barack Obama, Political Science, concentration in International Relations) I examined the differences between the 2 candidates web presences via different categories of search engine results and checking out their presence and popularity on some of the many popular social media websites as of November 4, 2008. The chart above quantifying Barack Obama’s domination of John McCain in social media websites and search engines is the result.

Barack Obama vs. John McCain – Social Media Presence

Facebook

3,032% more hits for Barack Obama than John McCain, Barack Obama’s Facebook page had nearly 4 times more followers and posts than John McCain’s page and had 1,335% more notes up. TechPresident reported Barack Obama‘s added 400,000 new friends on facebook in the last 2 weeks, a 20% surge.

MySpace

Both Candidates pages were fairly well designed compared to the usual chaotic look some favour. Barack Obama had nearly 4 times the number of friends on MySpace as John McCain, and 269% more search results for his name. Strangely enough, I found 147K comments on Barack Obama’s MySpace page but none at all on John McCain’s. Not sure why he didn’t display any, which seems one of the main points of Myspace. Possibly the fear of too many negative ones?

Twitter

Here we have a case of severe internet cluelessness on the part of the John McCain Campaign. Barack Obama cranked out 10 times more tweets than John McCain, had 2254% more followers, and 1,029% more search results. John McCain’s last tweet was October 24th! So clueless that he didn’t send a vote today tweet on election day!. Some power twitter users like Alltop Media mogul Guy Kawasaki have large numbers of follower, in Guy’s case 24,726 followers. Imagine having a few of those people on your list AND the fact that some of their followers will retweet and/or blog the message if they like it, and they have followers, etc, etc.

UPDATE: Thanks to Oliver and Faruk for pointing out I listed the wrong John McCain Twitter page, just corrected it. I mistakenly linked to a McCain fan page, who had nearly half the followers as the offical one but massively more tweets. Maybe John McCain should have outsourced his twittering to him:) Also updated, he has 29,202 YouTube subscribers.

Friend Feed

Barack Obama had 25% more mentions than John McCain.

Youtube

Barack Obama had nearly twice as many search results for his name as John McCain, and more than 5 times as many videos posted. Barack Obama had 117k subscribers and 25k friends and strangely enough John McCain had no friends or subscribers Sorry, still has no friends but 29,202 subscribers, Obama beat him by 300% on this. Or at least none displayed. Wonder why? Maybe’s his campaign doesn’t know how to use Youtube or maybe they’re semi antisocial about social networking? Or there might be too many people posting negative videos and comments? Not sure.

Flickr

The photo sharing site that was created here in Vancouver BC Canada, had nearly 5 times more search results for Barack Obama than John McCain. I found 50,000 photos on Barack Obama’s flickr page and 7,000 contacts, I could not find a profile of John McCain on Flickr.

Barack Obama’s and John McCains Official Social Media Sites

Barack Obama’s Facebook Site
Barack Obama’s Myspace Site
Barack Obama’s Twitter Site
Barack Obama’s Youtube Site
Barack Obama’s Flickr Photostream

John McCain’s Facebook Site
John McCain’s Myspace Site
John McCain’s Twitter Site
John McCain’s Youtube Site
John McCain has no Flickr Photostream

Search Engine Results for “Barack Obama” and “John McCain”

Google News, Images and Video

John McCain beats Barack Obama significantly in Google News though by 173%. There’s almost 3 times as many results for Barack Obama in Google images and 51% more hits in Google Video as there is for John McCain.

Blog Search Engines

Barack Obama has more search engine results than John McCain in both blog search engines, google and technorati and in in wordpress.com a site with 4,592,973 blogs where users create blogs for free and host them there. This blog uses WordPress, the free standalone version. Keep in mind that more search engine results or user generated social media does not always mean that the results are positive of the candidate, many are negative of both. The political blogosphere can be a brutal place. But as a politician, being ignored is the worst thing. Getting no attention won’t get you elected. Plus bloggers are often creating content and commenting in other social media sites beyond their individual blog. Bloggers will become even more important and courted in the future by political campaigns.

Internet Presence for Barack Obama’s and John McCains Official Websites

As previously mentioned, Barack Obama had nearly 6,000 percent more pages on his main website than John McCain did on his, 1,820,000 vs 30,700. Barack Obama has more and deeper links, more hits for his name in Google,

Overall Metrics

Of the 27 29 metrics I chose, Barack Obama absolutely crushed John McCain. Barack Obama led on 25 27 out of 27 29, John McCain led on only 1 (Google Blog Search) and the Candidates were tied on one (Google page rank). In some cases the John McCain campaign didn’t even bother to show up. The McCain campaign had no Youtube subscribers, Youtube friends, and Myspace comments, or at least none posted. Was that a result of campaign malpractice? Or not wanting to show the hostile reactions of users to his messages? Or something else? Republican minds should start asking some pointed questions, Democrats should be thankful.

Maybe they need to find a republican version of James Carville, head strategist for Bill Clinton’s winning presidential election who has ADHD. I remember reading somewhere that the #1 career for adults with ADHD was politics and #2 was sports (27% and 23% I think). We have understimulated brains (or are brains are processing so fast we burn up dopamine) so we do best in high stimulation, creative, challenging jobs. Many ADDers in high tech, marketing, advertising, entrepreneurs etc. In those areas, having ADHD can be a competitive edge. Factory floors are death for us. Boring repetitive paperwork is our kryptonite.

Choose Your Bias

Waxy‘s Andy Biao created an excellent Greasemonkey script that I use called Memeorandum Colors for the US political aggregator site that’s almost been my home page for the last few months, Memeorandum, the Techmeme of politics

Left-leaning blogs are blue and right-leaning blogs are red, with darker colors representing strong biases.

Check it out, it’s based on who the blogs link to, and don’t just view the blogs on your side of the political spectrum, view the rogue ones too:)

Conclusions

Overall Barack Obama’s campaign has

• a larger, more comprehensive presence
• more followers or subscribers on the social media websites
• more interaction with those followers
• much greater results in search engines

This is in spite of John McCain being a big political celebrity FAR longer than Barack Obama was. John McCain was first elected to congress in 1982, and even before McCain ran in 2008, other than George Bush, McCain was probably the best known, most interviewed, and most written about Republican politician. That’s why I laughed when I saw McCain’s celebrity ad about Obama, look at how many mention’s John McCain has in the Internet Movie Database, like Bill Clinton, he was jealous because he was no longer the biggest political celebrity in Washington.

Outside of Illinois, Barack Obama was largely unknown until he gave his famous keynote speech at the democratic convention in 2004. So 26 years of exposure vs 4 years and yet Obama still massively dominated the online landscape.

Candidates Websites

Obama’s website one of the best designed websites I’ve seen in 15 years online, far better designed then John McCain’s, plus Obama’s has more features, more option and more content and is far more sophisticated than John McCain’s. Senator Obama hired Blue State Digital to run his online campaign, here’s their case study on it.

Barack Obama’s Website simply crushes McCains in:

• quantity
• design
• features
• sophistication
• participation
• usability
• Social media features

Take a few moments and look at both sites and you’ll see the huge gap. Obama even created an online rapid response team to counter the lies thrown at him, called fight the smears. Brilliant move, cheaper than responding with TV ads.

McCain’s social network page has only 3 suggested sites, Obama’s suggests 16.

John McCain’s Knowledge of the Internet

John McCain’s unfamiliarity with the internet is well known,

I am learning to get online myself, and I will have that down fairly soon, getting on myself

in fact the Obama campaign created an ad based on it. Knowing the tubes does matter. Check out the Design for Obama website, no similar site for the McCain campaign.

Barack Obama’s Knowledge of the Internet

Barack Obama is younger and more computer and web savy. Here’s one quote from Marc Andreessen, coauthor of Mosaic, founder of netscape, and co founder of roll your own social network Ning who had a 90 minute one on one with Obama, early in 2007.

In particular, the Senator was personally interested in the rise of social networking, Facebook, Youtube, and user-generated content, and casually but persistently grilled us on what we thought the next generation of social media would be and how social networking might affect politics — with no staff present, no prepared materials, no notes. He already knew a fair amount about the topic but was very curious to actually learn more. We also talked about a pretty wide range of other issues, including Silicon Valley and various political topics.

Politicans can always hire people to create their websites and do their online marketing, fundraising, organizing and voter outreach programs. But if they don’t “get the net” or don’t know what questions to ask, they’re at a severe disadvantage to those that do get it and do spend time on it.

Barack Obama won the presidency for many reasons, but one is that he really understood the force multiplier called the internet. He knew who the internet users are, understood their needs and wants, how and why they use it, and how to connect with those people, and get them involved so they do most of the building and content creation themselves.

Fear can be effective in politics, but it doesn’t create as much content as hope. Republicans like Sarah Palin and Rudy Guiliani mocked Barack Obama for being a community organizer. Barack Obama community organized on the net with devastating effects to the Republican campaign.

One reason Barack Obama won was because he open sourced his campaign especially the online aspect. McCain’s was command and control by multiple competing lobbyists.

Other politicians in the US, Canada, and other countries will either start learning more about the internet culture, blogging, other social media and getting involved the right ways (the wrong ways will cause a massive backlash) or risk getting their asses kicked in online fundraising, raising awareness, finding and engaging new volunteers, online and offline organization, and voter outreach by those who do understand and use the internet and social media. Plus they have to change their beliefs, attitudes, policies and operating procedures to appeal too younger, digitally connected people, technology by itself ain’t enough.

Social media consultants will be getting much busier.

“One person can make a difference and every person should try.”

US President John F. Kennedy

Online ADHD awareness and advocacy activities are easier and cheaper than offline ones, and are often more effective. Especially since most people with ADHD don’t have a lot of local services available for them because of a lack of awareness about ADHD and an unwillingness for most adults with ADHD and their families to demand change and services for people with ADHD in the offline world for a variety of reasons. Governments don’t give services out of the goodness of their hearts, people need to raise awareness of why those services like basic diagnosis and treatment of ADHD are important and demand services from the government and the health system.

Regardless of which party you support, I’d strongly suggest ADDers and their families start looking at the US Presidential candidates online websites, blogs and forums to see how they’ve been effective and organizing and connecting and motivating people, fundraising and spreading ideas so that we in the ADHD world can learn from some of tactics and strategies of what they’ve done well to help get the word out about our cause.

Even if you don’t like Barack Obama, his websites and blog have been really massively cutting edge in a number of ways and I think that there are many lessons to be learned from their many sites and many sub sites and individual state websites and blogs. I’m sure there are also some good ideas from John McCain’s sites too. Canada just had a federal election and frankly most of the major parties websites were massive disappointments in comparison.

Probably these sites may start shutting down a lot of their content shortly after November the 4th, so now is the time to check them out and document the good ideas you can find. To save a visual good example of an online site, take a screenshot. On a Macintosh you can take a picture of the screen by pressing the apple key plus the shift key plus the 3 key (or press and hold the 4th key to drag the picture to the area you want) to take a visual example of someone doing something useful online.

We may not be able to duplicate all of their online tactics and strategies, but even if we learn one or two, I think that can help us, whether those ideas are applied to the larger websites like ADDA,  CHADD, and the ADHD Coaches Organization or individual ADHD support group websites or personal websites or blogs that some of us ADDers have.

If you have ADHD and don’t have a website or blog of your own, and you want to make a difference for people with ADHD, or have some opinions and ideas you feel are worth expressing, or just want to counter the lies and myths out there about ADHD in adults and children, consider getting one. Ideally one with a domain name, but if not, get a free easy to use blog from sites like WordPress.com, where they take care of most of the technology for you. See this page for some features. 10 years ago you had to be a techie to have a website, today your non techie grandmother can easily create a website or a blog. Or get your teenager to set one up for you:)

There are still a lot of people out in the online world saying ADHD doesn’t exist and is not a real condition. I’ve even created a special page for those dinosaur people. But there needs to be more ADDers and their families with online presences, as well as ADD support groups with websites or blogs. The more ADDers and their families start getting online and showing the human side of ADHD, and start raising awareness and demanding services, the quicker the stigma of ADHD will be reduced and the quicker people with ADHD will get the resources that they deserve. Resources that people with other mental health condition have gotten because they demanded them.

Here in Vancouver BC Canada, it’s very hard to find someone who knowns enough about adult ADHD to diagnose it. We had the only provincial BC Adult ADHD clinic at Children’s hospital get shut down because the one year wait list was politically embarrassing for the Gordon Campbell Liberal (neoconservative really) provincial government. The patients were abandoned and still are. We got coverage on one TV news show but nothing else. Maybe if there were more online ADHD websites and blogs in this province, together we might have been able to save that BC Adult ADHD clinic. Maybe if there were more ADHD websites and blogs in your province or state you could help ADDers get the resources that you’ve been complaining that you need. You can bitch to your spouse and do nothing, or take some action.

I’m trying to raise awareness of ADHD for our vancouver civic election, focusing on the well known links between ADHD and addiction, given Vancouver’s huge addiction and crime problems, hoping the local media and the blogosphere will start noticing. We’ll see how that turns out. There’s also a provincial election in BC soon, May 12, 2009.

Maybe people have seen 1 or 2 useful ideas on the main presidential candidates websites/blogs or on individual local candidate websites that they could share with others Adders. Or send me some examples of how a campaign organized people, promoted ideas, connected people or raised funds that could be applied to people with ADHD (not just why my candidate is better their opponent) and I’ll blog them so other ADDers can take those ideas and modify them to their needs and put them into practice.

A study in the Journal Alcohol and Alcoholism looked at 91 adults with alcohol dependence and 61 adults with multiple substance addiction and they determined if these patients were affected by ADHD.

RESULTS: 20.9% WURS-k (Wender Utah Rating Scale) 23.1% (DSM-IV diagnostic criteria) of the alcohol-dependent patients showed evidence of retrospective ADHD affliction in childhood. With the help of CAARS, (Conners’ Adult ADHD Rating Scales) ADHD was proved to be persistent in 33.3% of the adult patients.

But Adults with ADHD are only 5% of the population.

In the group of substance-addicted patients 50.8% (WURS-k) and 54.1% (DSM-IV) presented with diagnostic criteria for ADHD in childhood and 65.5% (CAARS) showed evidence of ADHD persisting in adulthood.

Again Adults with ADHD are only 5% of the population.

CONCLUSIONS: These results reveal that habit-forming illnesses can be associated with a high comorbidity with ADHD, expressed in the form of alcohol abuse and also in consumption of illegal drugs. The results underline the great importance of early and adequate diagnostics and therapy of ADHD for the prevention of habit-forming illnesses.

While adults with ADHD are only 5% of the population, ADDers are dramatically over represented in people who are addicted to alcohol and drugs, the SMALLEST numbers I’ve seen on ADHD and addiction are 20-25% in peer reviewed clinical journals in Pub Med, (a service of the U.S. National Library of Medicine indexing articles from MEDLINE and other life science journals for biomedical articles) and I’ve frequently seem much larger ones. If adults with ADHD aren’t diagnosed and treated, and 85% of them aren’t, they will find ways to treat themselves or self medicate. Some will self medicate in positive ways with exercise, work or hobbies they enjoy, meditation and sex. Others will self medicate with alcohol and drugs, tobacco, food, and gambling, because they all boost dopamine, the brain chemical ADDers are short of and that the ADHD medications increase.

So at a minimum, adults with Attention Deficit Disorder are 4 times more likely to abuse drugs and alcohol, there’s no controversy at all about those numbers by those who know ADHD. But in the media, government, the health bureaucracies and the education systems often seem to be totally oblivious of this. Even if you don’t care about us as human beings, the financial costs of NOT diagnosing and treating adult ADHD are huge. And we’re not even talking about the higher rates of eating disorders, depression, dsythemia and anxiety, let alone crime (also off the charts) among Adults with ADHD. But on the flip side there are billionaires with ADHD, and also many strengths associated with ADHD, properly managed.

Here’s some articles and blog posts on the links between ADHD and addictions.

There is a huge problem in my hometown Vancouver BC Canada with drug and alcohol abuse and trafficking and associated crime, violence and homelessness, we’re in the middle of a civic election and yet no one is mentioning the connection between ADHD and these problems. No politician, no one in the media is talking about it. Peter Ladner candidate for the NPA isn’t talking about it, Gregor Robertson, candidate for Vision Vancouver. Or COPE. I searched on their websites for ADHD and found nothing. We really need a full time adult mental health advocate at city hall. Even though mental health is a provincial jurisdiction, Vancouver often pays the biggest cost of the provincial government’s inaction on mental health. There is no BC provincial adult mental health advocate, there should be one.

It’s hard to find someone in BC to diagnose and medically treat ADHD, so few are trained in it because it’s not being adequately taught in our medical schools, and I get people emailing me and phoning me to find out where to get diagnosed for ADHD several times a week. The BC Liberal (really neo-conservative) government closed down down the only provincial Adult ADHD clinic at childrens hospital because it had a 1 year wait list, which was politically embarrassing. Kill the wait list, avoid bad media coverage about long wait lists. I contacted the NDP (the left wing opposition) repeatedly to help raise the issue in question period but I kept getting shuffled around, promises were continually made and nothing happened. We got coverage on BCTV but no other media outlet and the BC adult ADHD clinic is still dead and the patients are still abandoned.

So diagnose and treat ADHD in children and adults now, or pay a hundred times the price or more in financial terms and in human suffering later, your choice citizens. You’ll be paying the cost one way or another.

Do you know if it is? Do you know if it’s not?

Most protein powders, protein bars and protein drinks are made with whey protein, which is made from milk. Is your government checking and letting you know if the whey protein products that you’re eating or drinking safe to consume? Especially since the whole Chinese baby milk scandal was because the biggest dairy companies in China were watering down there milk to make more money and using melamine  to hide that since adding melamine increases the protein content in such poisoned milk products so the milk doesn’t look like it’s watered down.

By 22 September, nearly 53,000 illnesses, over 12,800 hospitalizations, and four infant deaths had been reported, caused by kidney stones and other renal failure. The chemical appeared to have been added to milk in order to cause it to appear to have a higher protein content.”

Melamine is a metabolite of cyromazine, a pesticide… Ingestion of melamine may lead to reproductive damage, or bladder or kidney stones, which can lead to bladder cancer

Melamine was also used in the 2007 Chinese pet food scandal where pet food made from China killed dogs and cats in North America, Europe and South Africa. But it wasn’t just pet food.

the FDA and U.S. Department of Agriculture said that between 2.5 and 3 million people in the United States had consumed chickens that had consumed feed containing contaminated vegetable protein from China

Both Chinese

government officials and manufacturers went so far as to deny that vegetable protein was even exported from China and refused for weeks to allow foreign food safety investigators to enter the country….

Well it’s not just a Chinese problem anymore.

It is now clear that China has exported dairy products like powdered milk and milk protein products around the globe and we know that some of them came to the United States,” said Wenonah Hauter, executive director of Food and Water Watch. “It is time for the F.D.A. to take this issue seriously and stop the import of dairy products from China until this situation is under control.

The US has imported two million pounds of a milk protein called casein this year, along with other powdered milk proteins that are used as ingredients in many processed foods, according to figures from the United States Department of Agriculture. This includes 293,000 pounds that were imported in July. The Food and Drug Administration did not immediately return calls for comment on Thursday.

I don’t know if or how much Chinese milk protein product were imported into Canada, but if the US did, highly likely we did. Here in Vancouver Canada, there are a lot of health food and supplement stores selling protein powders, not only for body builders and athletes, but also for those who want a quick and easy source of protein. I’ve been told by one store that some of the American made protein powder come from whey made in China.

Why is no one in the media or opposition politicians in the election asking questions about the safety of protein powders, drinks and bars especially since the vast majority of them are made with whey or milk protein?

I’m not saying that I know for sure that there is melamine contaminated protein on our shelves, but I’m saying it’s a definite possibility there could be, and consumers have a right to know, and no one in Canada or America seems to be checking to protect us, and they should. The Europeans and Asians are.

European Union regulators on Thursday ordered rigorous testing of imports containing at least 15 percent milk powder after concluding that food containing tainted milk powder from China may well be circulating in Europe and putting children at risk.

So did Indonesia and the Philippines. Why is Canada and America so far behind? Is it the neoconservative beliefs of the Stephen Harper conservatives here in Canada  who don’t want the government to regulate food safety but for ideological reason prefer that industry do itself? This idea the Tories get from the US Republican party that most governmental regulations are evil and kill or reduce them as much as possible and let industry regulate itself? US President George Bush was so against insanely regulating industry that he cancelled a regulation reducing the level of arsenic in the drinking water. Arsenic!

Hi, please re-elect the Conservatives (or the Republicans in the US) with a majority government because we don’t believe in government and want to do are best to weaken or eliminate as much government as possible and let the private sector watch and govern itself instead of having government do so because there’s never any dishonest or unethical people in business, just in other areas:) Well that worked out well on Wall Street didn’t it? Or the 2008 Canadian Maple Leaf meat poisoning (listeriosis) outbreak with 18 dead so far, and probably more to come since the symptoms may not appear for 90 days. The Harper government transferred inspection duties for the Canadian food inspection agency to the meat industry. Maple Leaf was an early adopter. Harper even lobbied to have US listeria standards lowered. Read the excellent editorial on the topic Listeriosis is the least of it by the  Canadian Medical Association Journal (PDF)

Why aren’t Canadian and American regulators doing the same as the Europeans and Asians? They should be checking to see if any protein based products that come from milk or milk proteins made from China are in our stores and if there is they should be banned or at the least tested for melamine and the consumer should know about it. Milk and protein powder, bar and drinks are the obvious ones but what other food products might be infected? Protein is added as ingredients in other foods too under various names. The governments should also make it mandatory to list if ingredients in foods drinks or supplement come from foreign countries and list that on the labels.

One of the 21 dairy firms in China new about the problem in December but “did not even begin testing its milk for dangerous substances until June, the cabinet probe reportedly found.”

The London Times reports that half of all dangerous goods seized in Europe in 2007 came from China. Also

The determination to stage a perfect Olympic Games may also have delayed revelation of the adulterated milk powder. Twenty-one topics were banned from Chinese media during the Olympics – eighth on the list was food safety scandals.

So the Chinese communist government was willing to let their own citizens babies die so they wouldn’t get negative publicity during the Olympics. Wow.

I think that all food products from China should be tested for safety, it’s not like this is the only time this has happened and even though they occasionally execute people for corruption, it still goes on. Corruption, lack of proper government oversight, lack of truly free and independent consumer protection organizations and lack of a free press to report on such corruption and public safety seems to be quite a deep systemic problems in China, much more so than in the west. Although we sometimes have corruption and scandals too (In Canada read On The Take: Crime, Corruption And Greed In The Mulroney Years, in the US under the Republican party, there’s been just too many to for me to remember) we still have a semi free press to expose such things, China doesn’t.

Why isn’t your local and national media asking these questions? Why aren’t your politicians, especially the opposition parties asking these questions in the midst of national elections in both countries? If not for the good of the country at least for their own partisan political advanatage. Are some parties more concerned about letting companies do whatever they want with minimal or no government oversight so their neoconservative ideology is pure, (or perhaps it may be due to maintaining the wealth of their campaign contributors), or are they willing to use government to do what the main function of government should be, protect their citizens from harm. Think about that when you vote.

I tried contacting the national offices of the 3 opposition parties in Canada, the Liberal party, the Green party and the NDP to suggest that they look into it, most of them seemed clueless even when I spelled out for them. I left voice mails with the news tip lines of the local papers the Vancouver Sun and Province, but had no responses.

Maybe some of you might start asking member of the media and your local politicians these questions and more if you value your health.

Apologies for the long post, did it while trying to get out the door to go to Barcamp Vancouver 2008.

I just edited this for clarity the next day.